Have you ever read the book “No, David!” by David Shannon? The author wrote and illustrated the book when he was five years old. Each page shows a picture of him doing something he was not suppose to do, with the words “No, David!”
I keep thinking about that book as David recovers at home from his surgery.
“No, David! Please don’t climb on the counters.”
“No, David! You cannot climb the tree.”
“No, David! Please get off of your bike.”
“No, David! We’re not going bowling or swimming.”
The doctors told me many times that I would be surprised by how quickly David would recover from his brain surgery. I envisioned a quick recovery as two to three weeks of him sleeping most of the day, playing a bit with the other kids, but mostly just observing. I could not have been more wrong!
We arrived home late Tuesday night. David woke up at 7 a.m. on Wednesday with his older siblings. He started bustling around with them like any other morning getting ready for school. He asked if he would be able to go to preschool that day. He started climbing the counters to get some dishes for himself. He wanted to play baseball and golf. Truthfully, I about died from anxiety! I kept envisioning him accidentally getting whacked in the head during the excitement of being back with his siblings!
As soon as his siblings left for school, he walked back to his bed and slept for FOUR hours! Then, he woke up and started playing again. It was crazy!
I can’t believe how well he is doing. It is difficult to keep him down when the other kids are at home. He still tires quicker than normal and he’ll fall asleep within minutes of the house being quiet. But, he is happy and quickly working up to his normal pace of life!
David has not had any seizures since his surgery. He seems to be calmer than before, too. The neurologist said he is not surprised that David is calmer. He described David’s brain (pre-surgery) as a “fire storm” of electrical activity. Now, David’s brain seems quieter.
David will stay on all of his regular anti-seizure medications for a long time (1-5 years) to make sure his brain stays seizure free. If, over time, David stays seizure free and if his EEGs show that there is not seizure activity, then we’ll be able to possibly wean him from some of his drugs. But we have a different boy than we had before surgery and we are SO, SO thankful.
We are thankful for modern medicine! We are thankful for the prayers of so many; for the hand of God; for the miracles we’ve seen. Mostly, we’re thankful to see a calmness in David’s eyes.