Released from the Hospital

David was released from the hospital early this afternoon.  I find it amazing that only a few days ago doctors performed a major, life-altering surgery on him.  We met another boy in the recovery unit who had the same surgery as David on the same day as David.  (There are two pediatric neurosurgeons who perform resections.) […]

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Removal of the Bandages

This morning, the doctors removed David’s drain and bandages from his head.  An emotional moment for all of us. Visually, it took time for me to come to terms with what I saw.  My heart was heavy.  I watched other family members’ eyes fill with tears as they saw David’s head for the first time.  It […]

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No More Sharks

I’m David’s paternal grandmother and a guest blogger at Welcome 2 Holland.  Yesterday, April 24, was not like any other day. It was a day of high emotion that I can only release through writing. We were a brave little group traveling to the hospital at 6 am, but not as brave as David. His ability […]

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Post Surgery

One of my favorite books is “The Hiding Place” by Corrie Ten Boom.  The book tells of Corrie’s life during World War II.  For me, it is one of those important books I want my children to read and understand. Corrie’s father often took her with him when he traveled for his watch business.  A […]

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Morning of Surgery

Waiting for surgery started like this:  It soon became this: And then this:  David wanted to show Kate his yellow socks:  With our surgeon, Dr. Gonzalez-Martinez.  Only one parent was allowed to go back with David to surgery until he fell asleep, thus my outfit. Surgery started at 7:30 a.m. and is expected to go […]

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Brain Surgery

I remember the first time someone talked to me about brain surgery.  Shortly after David received his diagnosis of epilepsy, the epilepsy nurse explained the treatment options available. She mentioned brain surgery and that the doctors had already talked about David as a possible candidate for brain surgery. “Wait.  What?  Did you just say brain surgery?  For […]

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Preparing for Surgery

Last week I rode my bike for the first time this year.  One of the first songs that played through my headphones was “Beethoven’s 5 Secrets” by The Piano Guys.  Go ahead and look it up.  I’ll wait. Got it?  Okay.  Let’s ride together. As I rode, feeling my legs pump faster and faster, harder […]

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Flights and Hotels for Medical Travel

Most families with special needs children spend a lot of money on therapies, extra doctor appointments, hospital stays, service animals, medical supplies, etc.  The extra costs often result in financial hardship that is often overlooked. The costs of flights and hotels could make it impossible for someone to receive the medical care they need away […]

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The Right Word

I don’t know what word exists to describe my feelings today. Our neurologist in Cleveland, Dr. Lachhwani, called today to tell me about a change of plans for David’s surgery.  He told me that he and his team have continued working through David’s tests and decided there is no need for the SEEG.  They feel they can go directly to performing the resection […]

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